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Evaluation of a multidisciplinary cachexia and nutrition support service— the patient and carers perspective

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posted on 2021-01-01, 00:00 authored by Vanessa VaughanVanessa Vaughan, M Harrison, A Dowd, Peter EastmanPeter Eastman, Peter MartinPeter Martin
The Barwon Health Cachexia & Nutrition Support Service (CNSS) is an outpatient service focused on improving clinical outcomes and quality of life for patients with or at high risk of cancer cachexia. Patients see a multidisciplinary team, comprising a palliative medicine physician, physiotherapist, dietitian, and nurse practitioner. This study evaluated the service from patient and carer perspectives. In 2016/17, semistructured interviews were conducted with 12 patients and 9 carers attending the service, focusing on: (1) reflection on experience of the CNSS, and (2) describing how a cachexia-specific service can meet their needs and concerns. Analysis generated 4 superordinate themes: evolving perception of service value, empowerment through person-centered care, communication to patients and carers regarding health/disease information, and the importance of the multidisciplinary team-based approach. Generally, patients and carers reported overall positive experiences with the service, particularly with regard to improved communication and management of the patient. Findings confirmed the patient-centered and individualized approaches were particularly valued. These insights are a critical step in the development of recommendations for future clinical management of cancer cachexia.

History

Journal

Journal of patient experience

Volume

8

Pagination

1 - 7

Publisher

Sage

Location

London, Eng.

ISSN

2374-3735

eISSN

2374-3743

Language

English

Publication classification

C1 Refereed article in a scholarly journal

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