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"This is our life now. Our new normal": a qualitative study of the unmet needs of carers of stroke survivors

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posted on 2019-05-08, 00:00 authored by Alexandra M J Denham, Olivia Wynne, Amanda L Baker, Neil J Spratt, Alyna TurnerAlyna Turner, Parker Magin, Heidi Janssen, Coralie English, Madeleine Loh, Billie Bonevski
Many stroke survivors require care from informal carers such as family members and friends who may experience adverse impacts. This study aimed to qualitatively explore the unmet needs of carers of stroke survivors, and their preferences for interventions and support services. We conducted 24 semi-structured, qualitative interviews with carers of stroke survivors from the Hunter region, Australia. Inductive thematic analysis was used in the context of a needs-led framework to identify key themes of their unmet needs. Key unmet needs identified by carers of stroke survivors in this study centred on four main themes: (1) social relationships and support; (2) adequacy of information; (3) taking care of oneself; and (4) accessing appropriate services. Carers of stroke survivors desired the development of services which provide connectivity to information, training, education and community support; and inclusion in a community with social relationships and other carers of stroke survivors. Ongoing unmet needs often result in adverse health and quality of life outcomes for carers of stroke survivors. Co-designed programs and resources for carers, particularly relating to unmet needs in social, information, self-care and service access domains are needed.

History

Journal

PLoS one

Volume

14

Issue

5

Article number

e0216682

Pagination

1 - 13

Publisher

Public Library of Science

Location

San Francisco, Calif.

eISSN

1932-6203

Language

eng

Publication classification

C1 Refereed article in a scholarly journal

Copyright notice

2019, Denham et al.